Internet Cluttering Resources

About the presenter: M.S. in speech-language pathology and M.S. in counseling, is an ASHA Fellow and professor of Communication Disorders at Minnesota State University, Mankato. She is the webmaster for the Stuttering Home Page as well as the coordinator of this online conference. She holds Specialty Recognition in Stuttering and is the recipient of the ASHF DiCarlo Award for Outstanding Clinical Achievement, the 2003 Distinguished Contributor Award from the International Fluency Association. a 2007 Outstanding Contribution Award from the International Stuttering Association, the 2008 ASHA Distinguished Contributor Award, and in 2009 named to the National Stuttering Association's Hall of Fame.

Internet Cluttering Resources

by Judith Kuster
from Minnesota, USA

A short column that I wrote "Cluttering: The Other Fluency Disorder, appeared in The ASHA Leader, March 2009. The column, which is also online (http://www.mnsu.edu/comdis/kuster4/part86.html) featured several internet resources about "cluttering," and began

Typing "clutterer" into a standard search engine quickly leads to resources about hoarding and how to organize/declutter your life. After taking the quizzes (www.clutterless.org/TOC/Who/q_a.htm) and (www.clutterersanonymous.net/20questions.html) and determining that I am a clutterer, I am considering joining "clutterers anonymous." (www.clutterersanonymous.net).

But to a speech-language pathologist, a "clutterer" is a person who has a unique, relatively unknown fluency disorder. For many years, the classic book by Deso Weiss, (1964) Cluttering, Prentice Hall, was the most widely referred to resource on cluttering. St. Louis et. al (2003) state that "most seasoned clinicians have managed a few clients with the disorder. Many remember these clients not by how well they responded to treatment but by how puzzling it was to know what to do with them and how challenging they were to treat." (St. Louis, K.O., Raphael, L.J., Myers, F.L., and Bakker, K. 2003, Nov. 18. Cluttering Updated. The ASHA Leader, pp. 4-5, 20-22 (www.asha.org/about/publications/leader-online/archives/2003/q4/f031118a.htm).

Several excellent online resources about cluttering are highlighted and linked in that article. Some have been included in this online conference in whole or in part. However, there are additional online resources those interested in cluttering should know about. This presentation will include the resources mentioned in the Leader article that are still online, updating several of the links which have changed and add new resources in an attempt to integrate everything into a single Internet document or site which can be referenced as up-to-date cluttering resources on the Internet as of the time this article was written. The papers and information in this first online conference about cluttering (It's About Time: To Recognize Cluttering - http://www.mnsu.edu/comdis/ica1/icacon1.html ) are listed at the end of this article. As cluttering becomes more recognized, researched, and recorded, more Internet resources will need to be added to this list which will be hot-linked and become part of the Stuttering Home Page (http://www.stutteringhomepage.com). The reader is invited to suggest additional resources in the comments/questions attached to this presentation

As of this writing, there currently a few information-rich internet sites about cluttering:

The International Cluttering Association Website

The ICA website (http://associations.missouristate.edu/ICA) is a growing repository of information and materials about cluttering, some of which have been generously integrated into this online conference where threaded discussions allow opportunity for comments and questions of the authors. Several members of the ICA have also provided additional papers for conference on cluttering. Search and continue to watch the ICA site for additional updates and valuable information.

• Guidelines for a Cluttering Assessment by Yvonne van Zaalen op't Hof, Florence Myers, David Ward, and Ellen Bennett (http://associations.missouristate.edu/ICA/Resources/cluttering_assessment.htm)
• Computer-based Cluttering Assessment Tool (CLASP) is a free software tool for determining percentage of talking time cluttered by Klaas Bakker (http://associations.missouristate.edu/ICA/cluttering_assessment_program.htm).
• The entire book, CLUTTERING: A Clinical Perspective (1996) by Myers, F. L., & St. Louis, K. O. (1996) Singular, San Diego (http://associations.missouristate.edu/ICA/Resources/Books%20Manuscripts/Myers%20StLouis%20Book%201996/download_page_for%20MyersStlouisBook.htm)
• David Daly's Predictive Cluttering Inventory (http://associations.missouristate.edu/ICA/Resources/Resources%20and%20links%20pages/clinical_materials.htm).
• T.R.A.D.E.(Treatment, Research, Awareness, Diagnosis, Education), a quarterly newsletter (http://associations.missouristate.edu/ICA/Newletters/newsletter_archive.htm)
• Bibliographies about cluttering in three languages:
  • English (http://associations.missouristate.edu/ICA/Resources/Bibliographies/English%20bibliography%209-30-08.pdf)
  • French (http://associations.missouristate.edu/ICA/Resources/Bibliographies/French%20bibliography%2010-2-08.pdf)
  • German (http://associations.missouristate.edu/ICA/Resources/Bibliographies/German%20bibliography%2010-2-08.pdf)
• Where to look for help if one clutters (http://associations.missouristate.edu/ICA/where_to_look_for_help_if_you_cl.htm)

American Speech-Language and Hearing Association Resources

• St. Louis, K.O., Raphael, L.J., Myers, F.L., and Bakker, K. (2003, Nov. 18). Cluttering Updated. The ASHA Leader, pp. 4-5, 20-22 (http://www.asha.org/Publications/leader/2003/031118/f031118a.htm) (Includes "More on Cluttering" which "shows additional difficulties with articulation, rate and speech intelligibility" at the end of the article.
• For the past four years, ASHA has maintained handouts presenters at the annual ASHA conventions have provided. The following handouts are archived. If you are interested in downloading any of the handouts, open the handouts site for that year.
  • ASHA Convention - 2006 (http://www.eshow2000.com/asha/2006/handouts.cfm)
    No handouts listed with the keyword "clutter"
  • ASHA Convention - 2007 (http://www.eshow2000.com/asha/2007/handouts.cfm)
    • 0953 Cluttering Severity Assessment: Talking Time Measurement During Oral Reading Klaas Bakker
    • 0958 Is It Cluttering Without Rapid Speech Rate? SLPs' Perspectives Kelly Mische
    • 1327 A Framework for Stuttering & Cluttering: The Dual Premotor Model Per Alm
    • 1329 Identifying & Treating Cluttering: Effective Strategies Clinicians Need To Know David Daly
  • ASHA Convention - 2008 (http://www.eshow2000.com/asha/2008/handouts.cfm)
    • 0985: A Comprehensive Measure of Cluttering Severity (Bakker and Myers (a PPT, plus a scoring form for the severity measures)
    • 0986: Treatment of Cluttered Speech in Asperger's Disorder: Focus on Self-Regulation by Scaler Scott & Ward (a PPT)
    • 1582 Providing Worldwide Cluttering Education: Accomplishments of the International Cluttering Association by Scaler Scott, Bakker, St. Louis, Myers, Adams, Bennett Lanouette, Filatova, Kuster, Lanouette, Reichel, Rhein, Simonska, van Zaalen-op't Hof, & Ward (a poster session)
  • ASHA Convention - 2009 (The 330 page ASHA convention program (available in PDF at http://www.asha.org/uploadedFiles/events/convention/09ProgramSessions.pdf) contains abstracts of 3 papers with the key word cluttering. One of the sessions archived a handout)
    • 1632 Verbal Time Estimation in Cluttering Emily Garnett
• For two hours on January 12, 2009, ASHA's Special Interest Division 4 (Fluency and Fluency Disorders) sponsored a live, 2-hour forum on cluttering, featuring and concerns about cluttering and actively participate!! A panel of experts (Kathleen Scaler-Scott, Florence Myers, Ellen Bennett Lanouette, and Kenneth St. Louis). The forum was freely-available to all ASHA and NSSLHA members. The event was archived and the discussion is accessible to ASHA members at http://www.asha.org/forum.aspx?g=posts&t=10737430663
• The July 2009, Volume 19, Number 2 Perspectives , a peer-reviewed newsletter for ASHA Division 4: Fluency and Fluency Disorders, was made available for the 2009 ISAD online conference and as of this writing, the full-text of all the articles from this issue are still available at http://div4perspectives.asha.org/content/vol19/issue2/index.dtl Other issues of Perspectives are password protected, but allowing this issue to remain open, not only provides good information about cluttering, but also provides an excellent example of a regular benefit for Division 4 members - access to current and past Perspectives, and the opportunity to sign up for CEUs for current issues. If ASHA chooses not to continue making this issue of Perspectives freely available, the abstracts will still be online for those interested and the entire issue will still be available for all Division 4 members

Kuster's Website and past online conference papers related to cluttering has several materials and links, including:

• Daly, David, Cluttering: Characteristics Identified as Diagnostically Significant by 60 Fluency Experts (www.mnsu.edu/comdis/isad10/papers/daly10/daly10.html
• Kuster's Cluttering Bibliography from 1946 to Present (www.mnsu.edu/comdis/kuster/cluttering/clutterbib.html)
• Information about Spoonerisms (http://www.mnsu.edu/comdis/kuster/cluttering/spoonerisms.html)
• Interview with a Person who Clutters by Camil Reyes-Alami.(www.mnsu.edu/comdis/kuster/cluttering/camil.html)
• Some suggestions for Treating Cluttering (http://www.mnsu.edu/comdis/kuster/cluttering/ddaly.html)

   

• • Cluttering: Specialists work to put it on the map of fluency disorders by Jason Mosheim, Vol. 14, Issue 47, Page 6 ADVANCE Magazine (http://speech-language-pathology-audiology.advanceweb.com/Article/Cluttering.aspx)
  • Optional Symptoms of Cluttering, a class handout by Cindy Spillers (http://www.d.umn.edu/~cspiller/csd8205/printableoptional.html)
  • lass Handout on Cluttering by Michelle Harmon (http://www2.muw.edu/~mharmon/505Clut.htm)Links to additional online materials about cluttering
• Past International Stuttering Awareness Day online conference presentations remain online. (Note: several have been revised or updated and are included in the current online conference on Cluttering)
  • St. Louis and Florence Myers, wrote a paper, A synopsis of Cluttering and its Treatment (www.mnsu.edu/comdis/isad/papers/stlouis.html) from the 1998 ISAD online conference.
  • My Experiences With Cluttering by Joseph Dewey (www.mnsu.edu/comdis/isad8/papers/dewey8.html) from the 2005 online conference
  • Computer Aided Assessment of Cluttering Severity by Klaas Bakker, (Missouri, USA), Florence Myers and Larry Raphael (New York, USA) and Kenneth St. Louis (West Virginia, USA) from the 2005 online conference
  • Cluttering: Characteristics Identified as Diagnostically Significant by 60 Fluency Experts by David Daly (Michigan, USA) for the 2008 online conference
  • Putting Cluttering on the World Map: Formation of the International Cluttering Association by Florence Myers (New York, USA) and Peter Kissagizlis (England, UK) for the 2007 online conference
  • Therapy For Those Who Clutter a 45 minute narrated PowerPoint by Lisa LaSalle (Wisconsin, USA) for the 2009 online conference
  • T.R.A.D.E., newsletter from the International Cluttering Association by Charley Adams - (South Carolina, USA)

The British Stammering Association's page on Information about cluttering (http://www.stammering.org/cluttering.html) includes among other things

• When is speech too cluttered a article from the BSA newsletter "Speaking Out" by Peter Kissagizlis (http://www.stammering.org/cluttered.html)
• Peter Kissagizlis Recognized for his work on cluttering (http://www.stammering.org/news_kissagizlis.html)
• Tributes to Peter (http://www.stammering.org/peterk.html)
• Book reviews for
  • Cluttering - A Clinical Perspective by Myers and St. Louis (http://www.stammering.org/review_cluttering.html)
  • Stuttering and Cluttering by Ward (http://www.stammering.org/review_dward.html)

Support opportunities for Cluttering

• Cluttering (http://groups.yahoo.com/group/cluttering/) is an open Yahoo discussion forum for people who are clutterers as well as for professionals to learn with and from each other.
• K-12 Academic Cluttering Community is a currently inactive yahoo group with only 5 members (http://groups.yahoo.com/group/k12academics-cluttering/) K-12 Academics (http://www.k12academics.com/footer-menu/business-information) has a short explanation about cluttering online (http://www.k12academics.com/disorders-disabilities/cluttering
• Cluttering Speech (http://www.facebook.com/group.php?gid=56339307698) a Face book group to increase awareness of cluttering and create a social network.

Additional on-line resources provide helpful/interesting information on cluttering

• A cartoon by Jenny Loehr attempts to depict "the fundamental difference between cluttering and stuttering" (www.thepractice-cartoon.com/cartoon11.html).
• The Stuttering Foundation (www.stutteringhelp.org) provides a free, downloadable brochure - CLUTTERING: Some Guidelines by Kenneth O. St. Louis, Ph.D. in html (www.stutteringhelp.org/Default.aspx?tabid=82) or PDF (www.stutteringhellp.org/download/0065clut.pdf) format. The SF also has an excellent 42 minute video on Cluttering available for $10.
• An article on Wikipedia provides some interesting information on the history of cluttering http://en.wikipedia.org/wiki/Cluttering (
• An extensive website on Cluttering which includes an Introduction, symptoms, causes, treatment and videos (which do not relate to cluttering as of this writing), - http://www.wrongdiagnosis.com/c/cluttering/intro.htm - although the wrongdiagosis.com claims to be in compliance with the International Health on the Net Foundation's "honor code," (http://www.hon.ch/HONcode/Conduct.html?HONConduct577616) there is much on this site related to "cluttering" that one should read with a very critical eye. )
• Online resources to consider for slowing down the rate of speaking, which may be appropriate for clients who clutter.
  • Altered Auditory Feedback a free software program for PCs designed by Richard Arenas (http://myweb.uiowa.edu/rarenas/index.htm)
  • Fluency Coach - free software for PC for people who stutter to experience Altered Auditory Feedback/choral speech (http://www.fluencycoach.com/download.php)
  • Working on Speech Rate Program by Joseph Kalinowski and colleagues (http://www.speechrate.com)
  • Motormouths Don't Make Sales (http://sbinfocanada.about.com/od/speakforsuccesscourse/a/speechlesson4.htm)
  • Help for the Speedy Speaker: Techniques for Slowing Down a Fast Rate (http://web.archive.org/web/20061215062509/http://members.aol.com/cillae/)

     

A few audio/video online resources in addition to those mentioned above or included as part of this conference

• What is Cluttering - Craig and Chamonix talk about it on the AIS Blog - (http://stutteringtreatment.org/blog/2010/02/what-is-cluttering-craig-and-chamonix-talk-about-it/)
• YouTube - cluttering speech disorder (http://www.youtube.com/watch?v=HhMWHAW8v4Y)
• YouTube - Benedictine Monastery (http://www.youtube.com/watch?v=EXtKWoVyb-Y)
• YouTube - AIS client Craig talks about cluttering - (http://www.youtube.com/watch?v=LfXgh3dQH1M)
• Therapy Times: Speech Therapist Treats Cluttering Disorder (Like Stuttering) - (http://video.google.com/videoplay?docid=126107187060605861)

For additional scholory research on cluttering, one may use access to peer-reviewed journals that are available online. Typically the article abstracts are freely available, however, you often must pay for a single copy of the article or be a subscriber to the journal to have full-text access. Below are some places to look for articles on cluttering. (Although you will often get articles about hoarding in some of the journals listed, if you are searching for titles, use the keyword "clutter" since the title may contain clutterer, clutters, cluttering, etc. and you might miss articles if you use the longer term).

• Abstracts to many professional articles about cluttering are included in an Annotated Bibliography Project by graduate students from MSU, Mankato (http://www.mnsu.edu/comdis/kuster/Bibliography/Bibliography.html)
• International Journal of Speech-Language Pathology, Volume 11 Issue 1 2009 Dysfluency: Stuttering and Cluttering (http://www.informaworld.com/smpp/title~content=g907775773~db=all)
• Journal of Fluency Disorders (http://www.sciencedirect.com/science/journal/0094730X)
• ASHA Journals - AJA, AJSL , SLHR, LSHSS, Leader Online, also has archive of back journals - JSHD - 1990 (last year printed) and JSHR from 1990-1996. (http://www.asha.org/publications/journals/)
• ERIC database - http://www.eric.ed.gov/
• PubMed - http://clinical.uthscsa.edu/pubmed/ (interface for MEDLINE, National Library of Medicine's bibliographic database)

And finally, listed below is all the information on this, The First International Conference on Cluttering - It's About Time: To Recognize Cluttering (http://www.mnsu.edu/comdis/ica1/icacon1.html) The conference, open from April 14-May 5, 2010, featured presenters from Bulgaria, Canada, England, Ireland, Netherlands, Norway, Scotland, and the United States. It included presentations from professors, researchers, clinicians, and people who experience cluttering on a personal level. Included in the conference:

• Office Hours - The Professional Is In where a group of 20 professionals interested in cluttering responded to a variety of questions.
• Learning About Cluttering, with presentation from
  • The professional community (People who teach, treat, and/or research)
    • Defining Cluttering
      • On Defining Cluttering Chapter 3, p. 27-51 of Myers, F. L., & St. Louis, K. O., (Eds.) (1992). Cluttering: A Clinical Perspective. Leicester: FAR Communications. Reissued: San Diego, CA: Singular, 1996.
      • What is Cluttering? Defining Cluttering in Terms of Its "Lowest Common Denominator" by Kenneth O. St. Louis (West Virginia, USA)
      • Cluttering: A Spectrum Approach to Definition by David Ward (UK)
      • Questions raised about cluttering definitions - facilitated by Kathleen Scaler Scott (Pennsylvania, USA) and Yvonne van Zaalen op't Hof (Netherlands) Open Discussion about Defining Cluttering
    • Cluttering: Should We Be Looking at Central Auditory Processing Abilities? by Carla Di Domenicantonio (Canada)
    • Understanding Cluttering: The Bulgarian Experience by Dobrinka Georgieva (Bulgaria)
    • Internet Cluttering Resources by Judith Kuster (Minnesota, USA)
    • Monitoring feedback as you speak: how DIVA contributes to explaining a part of the problem of cluttering, and to developing a therapy plan by Margaret Leahy (Ireland)
    • Towards a data-based definition of cluttering by Robin Lickley (Scotland)
    • The Worldwide Panorama of Cluttering: Non-Western Countries by Isabella Reichel, Florence Myers, and Klaas Bakker (USA)
    • Help The ICA Choose a Logo by Kathleen Scaler Scott (Pennsylvania, USA)
    • Treating cluttered speech in a young child by Lynne Shields (Missouri, USA)
    • My personal walk with cluttering: From nonbeliever to believer by John Tetnowski (Louisiana, USA)
    • Effects of Cultural Influences Upon Awareness of Cluttering: Latin American Countries by Chris Wilkerson and Klaas Bakker (Missouri, USA)
    • Cluttering: a language-based fluency disorder by Yvonne van Zaalen op't Hof and Philip Dejonckere (Netherlands) Questions/comments
  • From consumers (People who live with cluttering)
    • From People Who Clutter
      • My Experiences With Cluttering (text) and Joseph Dewey on Cluttering (a 30 minute video) by Joseph Dewey (Utah, USA)
      • People with Cluttering Have Room for Success by Tatyana Exum, Charlene Absalon, Baruti Smith, and Isabella Reichel (New York and Florida, USA)
      • An interview with Peter Kissagizlis: Cluttering and Me by Peter Kissagizlis (formerly of the UK)
    • From Families Dealing with Cluttering
      • Advocating For My Child: Building the Right Team by Caprice Gommoll (New Jersey, USA)
      • Cluttering - A Parents Perspective by Jonathan Wong (California, USA)
  • Assessment Information and Tools
    • Recent developments in the Cluttering Severity Instrument (CSI) by Klaas Bakker (Missouri, USA) and Florence Myers (New York, USA)
    • Computer-based Cluttering Assessment Tool (CLASP) by Klaas Bakker (Missouri, USA), Kenneth St. Louis (West Virginia, USA), Florence Myers (New York, USA) and Lawrence Raphael ( New York, USA)
    • When is it Cluttering and When is it Cluttering-Plus? a 45 minute narrated PowerPoint by Lisa LaSalle (Wisconsin, USA)
    • Guidelines for a Cluttering Assessment by Yvonne van Zaalen op't Hof (Netherlands), Florence Myers (New York, USA), David Ward (England, UK), and Ellen Bennett Lanouette (Florida, USA)
  • Intervention Information and Tools
    • Therapy For Those Who Clutter a 45 minute narrated PowerPoint by Lisa LaSalle (Wisconsin, USA)
    • Helping Clients Who Clutter Regulate Speaking Rate by Kenneth Logan (Florida, USA)
    • Clinical Nuggets: Treatment Treasures
      • Treating Cluttering: The Power of the Pause David Daly (Michigan, USA)
      • Seeing is Believing Carla Di Domenicantonio (Canada)
      • Speech Rate Control: A web-based application by Joseph Kalinowski (North Carolina, USA)
      • The Egg Carton Game by Ellen Bennett Lanouette (Florida, USA)
      • Caution: Speed Zone Ahead by Florence Myers (New York, USA)
      • Speech Pacing: Dots to help me talk by Melissa Potemra (South Carolina, USA)
      • "Two Thumbs Up" Nina Reardon-Reeves (Texas, USA)
      • Tuning in to listener feedback Kathy Scaler Scott (Michigan, USA)
  • An Opportunity For Professionals and Consumers to Share "Clinical Nuggets"- Basic Principles of Cluttering Therapy: Ten Tips for Working with Cluttering Disorders by Ellen Bennett Lanouette (Florida, USA)
• Support Group Opportunities for Clients
  • A Cluttering Yahoo Group by Judith Kuster (Minnesota, USA)
  • Cluttering: A Facebook Social Network for Persons Who Clutter by Sr. Carol Mary Nolan (Massachusetts, USA)
  • NorCal Cluttering Group - A social gathering for PWC by Jonathan Wong (California, USA) Questions/comments
• Research about Cluttering
  • Cluttering Education in Canadian University Programs - 2009 Survey Carla Di Domenicantonio (Canada)
  • Verbal Time Estimation in Cluttering Emily Garnett and Kenneth St. Louis (West Virginia, USA)
  • Differences in Hesitations between Clutterers and Non-Clutterers by Emily Garnett and Kenneth St. Louis (West Virginia, USA) Questions/comments
  • T.R.A.D.E., newsletter from the International Cluttering Association edited by Charley Adams - (South Carolina, USA)
  • Putting Cluttering on the World Map: Formation of the International Cluttering Association by Florence Myers (New York, USA)
  • How a person with cluttering and a SLT can spread the word about cluttering by Hilda Sonsterud and Helene Kvenseth (Norway)
  • And an opportunity to "spread the word" by downloading and distributing the following brochures about cluttering on International Cluttering Awareness Day - May 14
    • CLUTTERING: Some Guidelines The Stuttering Foundation - free, downloadable brochure developed by Kenneth O. St. Louis
    • International Cluttering Association Brochure - free downloadable brochure developed by Klaas Bakker, Isabella Reichel, and Ellen Bennett LanouetteSpreading the Word